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Alnylam Assist

Free Third-Party Genetic Screening and Counseling Programs


For more information, and to speak to someone from our team, please contact us:
Alnylam Clinical Trial Information Line
866-330-0326 (Toll-free within the U.S.)
+1 617-575-7400 (International)
clinicaltrials@alnylam.com

Alnylam is committed to developing RNAi therapeutics for genetic diseases and through Alnylam Assist™, is dedicated to providing support to patients, families, and caregivers. To that end, we are offering patients free genetic testing for select inherited diseases, including amyloidosis. Alnylam intends to implement certain aspects of Alnylam Assist broadly across its pipeline of novel investigational therapies in development.

    • ATTR Amyloidosis with Polyneuropathy (also known as Familial Amyloidotic Polyneuropathy (FAP)
    • ATTR Amyloidosis with Cardiomyopathy (also known as Familial Amyloidotic Cardiomyopathy (FAC)

How does Alnylam Assist Work?

Your doctor will need to sign up for the program. He / she can then take a blood sample and submit it to a third-party laboratory for testing. Results will be sent to your doctor. We recommend that you speak with your doctor and a genetic counselor to answer any questions you have about the test before you have it done, and then again about your results.

Should I be tested?

We encourage you to speak with your doctor and/or a genetic counselor who can help answer your questions.

If you are experiencing symptoms that are consistent with familial (hereditary) amyloidosis, speak with your doctor about getting tested.

How Do I Sign Up for Alnylam Assist?

Patients
If you are interested in being tested, follow these steps:

  1. Download the Alnylam Assist brochure here
  2. Take it to your next doctor’s appointment
  3. Ask your doctor to complete the form and email it to TTRSupport@alnylam.com or fax it to 1.617.649.8707
  4. Discuss the need for genetic counseling with your doctor
  5. Have your doctor submit a blood sample to our third-party laboratory
  6. Meet with your doctor and genetic counselor, if needed, to discuss your results and next steps
Physicians
If you are interested in offering free hATTR genetic testing and genetic counseling to your patients,

  1. Download the Alnylam Assist brochure
  2. Complete the form and email it to TTRSupport@alnylam.com or fax it to 1.617.649.8707
  3. You will receive a confirmation that you are enrolled in the program
  4. Speak with your patient about having genetic counseling before and/or after the testing is done
  5. Submit patient blood sample and await the results
  6. Review the results with your patient and discuss next steps

For More Information about Alnylam Assist

If you have any questions about Alnylam Assist, or would like assistance with completing the form, please email TTRSupport@alnylam.com.