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Our Commitment

Alnylam’s commitment to patients and their families is not only to develop therapies with the potential for a positive impact on patient health but also to serve the patient communities through education, empathy, and awareness. Over the course of the year, there are a number of initiatives, which are supported by patient advocacy organizations to raise disease awareness. These initiatives encourage and inspire us to connect with the larger community to raise awareness amongst the general public and decision-makers in an effort to gain insights into unmet needs and identify ways to improve the lives of those who are affected by these diseases.

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World Hepatitis Day

July 28th is World Hepatitis Day—a day, since 2010, the World Health Organization (WHO) has set as one of only four official disease-specific world health days. World Hepatitis Day is celebrated each year with the goal to bring awareness about viral hepatitis, to call for patient access to the best treatments, better prevention programs and government action to eradicate this disease as a public health threat by 2030.

Along with the World Hepatitis Alliance (WHA)—a group of 230 patient-led and patient-driven organizations—World Hepatitis Day is led by global leaders who strive to improve the lives of over 400 million people affected by chronic viral hepatitis through better awareness, prevention, care, support, and access to treatment.

Alnylam is also doing its part to eliminate viral hepatitis, not only through its development of our Hepatic Infectious Disease pipeline, but also by partnering with WHO and WHA in the “NOhep” campaign for World Hepatitis Day. Alnylam employees across the globe wore the message of “NoHep” throughout the day and participated in other awareness activities including an educational seminar—which focused on Alnylam’s own robust HBV program and commitment to serve those who are affected every day by viral hepatitis.

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Bleeding Disorders Month and World Hemophilia Day

“Bleeding Disorders Awareness Month,” was recently approved by the U.S. Department of Health and Human Services (HHS) as a National Health Observance in March. In previous years, March was dedicated to Hemophilia Awareness but through this new initiative, it has been expanded to unite the community and raise awareness of all inherited bleeding disorders and their potential health problems.

In 1989, the World Federation of Hemophilia (WFH) established World Hemophilia Day to bring the bleeding disorder community together on April 17th, which is the birthday of WFH founder Frank Schnabel. Each year, World Hemophilia Day is observed globally. The hope is to bring the bleeding disorders community together and increase the awareness of hemophilia and other inherited bleeding disorders.

In an effort to recognize these important initiatives and bring awareness to Bleeding Disorders, over 400 Alnylam members came together in one location to don a red tie and participate in the “Red Tie Challenge” as a way to show our unified support to the community. These photos were shared through our social media channels to help spread awareness. Alnylam also hosted an internal showing of the powerful documentary, Bad Blood: A Cautionary Tale.

National Porphyria Awareness Week: April 16-23, 2016

Porphyria is a group of at least eight disorders that differ considerably from each other. Each year, a week in April is dedicated to National Porphyria Awareness. This event provides the opportunity to honor and recognize those who are affected by this rare disease and to create greater awareness of the disease amongst the broader community. Alnylam has created social media posts to highlight facts about this debilitating disease and to help spread awareness. Alnylam has also encouraged employees to donate to the American Porphyria Foundation through their partnership with AmazonSmile.