Advocacy for Impact Grants

Benson, living with PH1

Advocacy for Impact Grants

A Global Competitive Grants Program for Patient Advocacy Groups

The application submission deadline for the 2019 – 2020 program has passed.

Alnylam’s Advocacy for Impact Grants is a global competitive grants program that aims to inspire patient advocacy groups to develop solutions to address critical unmet needs in the rare disease communities they serve.

People with rare diseases often face unique challenges due to the complexity of their conditions, and we recognize that unique challenges call for creative solutions. We developed Advocacy for Impact Grants with that in mind, and because, at our core, we value and understand how exploring and developing new ideas has the potential to create high-impact initiatives that are a catalyst for change. In its second year, Advocacy for Impact Grants will continue to provide advocacy groups the resources and space to bring new projects and ideas to fruition.

In the inaugural year of Advocacy for Impact Grants, seven patient advocacy groups in six countries across three continents received grants totaling nearly US$250,000 to fund new initiatives supporting two rare diseases (Learn more about the 2018 recipients and their projects). This year, we are continuing our commitment to supporting patient advocacy groups in their efforts to develop solutions for the rare disease communities they serve.

Advocacy for Impact Grants is a global program, and Alnylam recognizes that unmet needs will differ across diverse communities and geographies. We encourage patient advocacy groups from around the world to apply with projects targeted to specifically meet the unique or special needs of their own communities. Groups can submit applications describing their new projects in any language.

Eligibility

Alnylam’s Advocacy for Impact Grants focuses on three key disease areas in communities around the world:

This competitive grants program will recognize and fund new projects of up to $50,000 USD (or equivalent local currency) that aim to:

  • Increase disease awareness and access to diagnosis
  • Offer education to patients, families, caregivers, healthcare providers, and/or public
  • Improve patient care

Alnylam reserves the right to provide no funding if no applications are received that fully meet the eligibility and review criteria.

Please note that applications solely focused on research or for registries will not be considered as part of this year’s program. Recipients of the 2018 grants must wait one application cycle before applying again and therefore are not eligible to apply for this year’s cycle.

The application submission deadline for the 2019 – 2020 program has passed.

Applications will only be accepted via email to AdvocacyForImpact@alnylam.com, and must be downloaded from this website. Interested groups must download the application and complete it before submitting via email with the necessary attachments outlined in the application. The application submission deadline for the 2019 – 2020 program has passed.

Application Guide

For our submission process, eligibility criteria, application questions and review criteria, please read the Application Guide.

 

Download in English ›

The Application Guide is available in several additional languages:

Dutch | English (UK) | French | German | Italian | Japanese | Portuguese | Spanish | Swedish

Application Form

Apply using the Application Form.

 

Download in English ›

The Application Form is available in several additional languages:

Dutch | English (UK) | French | German | Italian | Japanese | Portuguese | Spanish | Swedish

Brochure

Please see the Brochure for additional information.

 

Download in English ›

This brochure is also available in:

English (UK)

2019-2020 Alnylam’s Advocacy for Impact Grants Timeline

Read the Application Guide today and take a first step towards creating meaningful change in the rare disease community.

Preparation

Nov 19, 2019 – Jan 31, 2020

Download and read the entire Application Guide.

Submission

Nov 19, 2019 – Jan 31, 2020

Download and fill out the Application Form. Gather the required supporting documents during this time.

Return the completed Application Form via email by Jan 3, 2020 at 11:59 pm US Eastern Time.

Review

Apr 2020 – May 2020

A review committee comprised of senior Alnylam leaders and external experts with experience in nonprofits and rare disease patient advocacy will review the applications based on set review criteria.

Notification

Mid 2020

All applicants will be informed of the results of the review process early Summer 2020.

If you have any questions, you may reach out to us directly at AdvocacyForImpact@alnylam.com.

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