Advocacy for Impact Grants

Benson, living with PH1

Advocacy for Impact Grants

A Global Competitive Grants Program for Patient Advocacy Groups

People with rare diseases face unique challenges due to the complexity of their conditions, and we recognize that unique challenges call for creative solutions. At our core, we value and understand how exploring and developing new ideas have the potential to create high-impact initiatives that are a catalyst for change. Therefore, we want to give patient advocacy groups the resources and space to bring new projects and ideas to fruition. Alnylam recognizes that, as a global program, impactful ideas will look different to diverse communities and geographies, so we encourage patient advocacy groups from around the world to apply with projects targeted to specifically meet the unique or special needs of their own communities.

We are thrilled to announce seven 2018 recipients for the Advocacy for Impact Grants. The grants fund projects that will benefit amyloidosis and porphyria patient communities in six countries across The Americas and Europe. Click here to see the full descriptions of the patient advocacy groups and their projects.

Advocacy for Impact Grants is an annual program that will be relaunched with another call for applications later this year.


In the first year, the Advocacy for Impact Grants will focus on 3 key disease areas in communities around the world:

The competitive grants program will recognize and fund new projects of up to $50,000 USD that have not been previously implemented by the group and aim to:

  • Increase disease awareness and access to diagnosis
  • Offer education to patients, families, caregivers, healthcare providers, and/or public
  • Improve patient care


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