Genetic Testing and Counseling Program

NO-CHARGE GENETIC TESTING AND COUNSELING PROGRAM

Alnylam Act®

Alnylam Act® is a sponsored, no-charge, third-party genetic testing and counseling program for people with a family history or suspected diagnosis of certain genetic conditions.

The Alnylam Act® program was developed to provide genetic testing and counseling services to people and their families so that they may make more informed decisions about their health. Through the Alnylam Act® program, genetic testing and counseling is offered at no charge to individuals who meet the eligibility criteria. Genetic testing is available in the U.S. and certain other countries. Genetic counseling is only available in the U.S.

Watch the Alnylam Act® Video Introduction

What Is Genetic Testing?


Genetic testing can identify changes to DNA that may lead to a genetic condition. Results of a genetic test can confirm or rule out a suspected genetic disease or help determine someone’s chance of developing or passing on a genetic condition.

What Is Genetic Counseling?


Genetic counseling is a service that provides information and support for people who have, or may be at risk for, genetic conditions. Genetic counselors are trained healthcare professionals who can discuss genetics, inheritance, and disease risks. They can also discuss the benefits, limitations, and potential implications of genetic testing.

Talk to Your Doctor

Start the conversation to see if you could benefit from genetic testing and counseling with Alnylam Act®. Your doctor will handle the process from there.

We’re Committed to Privacy

While the program is sponsored by Alnylam Pharmaceuticals, all services are performed by independent third parties. Genetic counseling is only available in the United States for patients, physicians, or payers. The Alnylam Act® program was created to provide access to genetic testing and counseling to patients as a way to help people make more informed decisions about their health.

  • While Alnylam provides financial support for this program, tests and services are performed by independent third parties
  • Healthcare professionals must confirm that patients meet certain criteria to use the program
  • Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive
    patient-identifiable information. Alnylam uses healthcare professional contact information for research and commercial purposes
  • Genetic testing is available in the U.S. and certain other countries. Genetic counseling is only available in the U.S.
  • Healthcare professionals or patients who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use, or support any Alnylam product
  • No patients, healthcare professionals, or payers, including government payers, are billed for this program

CLINICAL TRIALS

Find out about studies evaluating the safety and effectiveness of our treatment options.

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PATIENT ADVOCACY

At Alnylam, we put you at the center of everything we do. We have a team dedicated to collaborating with patient advocacy groups and individuals affected by these rare diseases.

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