Patient Advocacy

Colin, living with acute hepatic porphyria

Patient Advocacy

Our Pledge to You

The Patient Advocacy team at Alnylam seeks to build relationships based on partnership and working toward common goals in order to serve the rare disease communities. We are passionate about what we do, and committed to engaging with patient advocacy groups to increase awareness, enable earlier diagnosis, advance the development of potential new therapies, and design initiatives that support the unique needs of patient communities. We act with a sense of urgency driven by our passion to make a difference. We will be open and transparent in our communications, and we hold ourselves to the highest ethical standards. If you are an advocacy group leader interested in collaborating with us, please send an email to

Each year, we participate in and support initiatives organized by patient advocacy groups that increase disease awareness, further research, and provide community support.

Bleeding Disorders Month & World Hemophilia Day.

Supporting the Amyloidosis Foundation’s 2016 Pittsburgh Amyloidosis Research Benefit.

Our team at the 2016 Global Genes Summit with Patient Advocacy Leaders

While we continue to develop treatments for rare diseases, we will strive to provide resources, develop educational materials, and help advocate for patients and their caregivers, worldwide.

If you would like more information about our Patient Advocacy initiatives, please send an email to


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